Last year, while in first grade, Dylan Siegel’s best friend was diagnosed with a rare illness called glycogen storage disease type 1B, a rare liver disorder that doesn’t have a cure.
Dylan, six years old at the time, was determined to do something about that. To the surprise of his parents, he wrote a book.
“Chocolate Bar” the book has since exploded, with t-shirt sales and a website helping to raise money. The book costs $20 with all proceeds going toward finding a cure.
“Chocolate Bar” has now raised an incredible $400,000, to the delight of researchers studying the disease.
“He’s raised more money for this disease than all the medical foundations and all the grants combined,” said Dr. David Weinstein, who studies and treats patients with the disease at the University of Florida. “Ever.”
With the money, Weinstein already has hired new staff.
Donate at the website, www.chocolatebarbook.com.
(READ the story from ABC News or watch a video below, from NBC News in May, 2013)